Thanks. I am not eligible for any government jobs in general. But I understand your point of choosing a stable job.

My partner is not eligible for SSI, disability or Medicaid because of immigration status. I will check about Affordable Care Act, but currently we are on employer provided health insurance plan.

I will go through the link you have posed and check the state resources too. Have not heard of personal care assistants before, but will find out more.

You might ask your state's department of human services. If your partner is a legal immigrant they should qualify. Medicaid is a 50:50 federal and state partnership.

Another link for you: https://rarediseases.org/policy-issues/medicaid-eligibility/

My employer is supportive too, I was able to take long leave and also last minute days-offs. I will think though this and thanks!

Thanks,I will consult a lawyer

Hope it helps. I am terribly sorry for your situation.

Divorce is not an option, I will consult a lawyer specialized in this.

I used to provide a lot of assistance when it was first diagnosed. But was fortunate to have a supportive manager/team. Took about four months of leave. Not things are better, but not as much as before the diagnosis. But I get your point... I want to be in a stable job. Insurance covers expensive medication and I can't even think of losing it

Thanks for the thoughtful reply. I found value in every point you have mentioned.

One option we thought of was to relocate to our home country near our family but did not because of good treatment available in US. But this is certainly something to think though for future.